Walk at Scentsy campus aims to "Shine a Light" on rare disease

Posted at 10:54 PM, May 18, 2019
and last updated 2019-05-19 00:54:42-04

MERIDIAN, Idaho — Hundreds of people showed up at a walk at the Scentsy campus in Meridian tonight, hoping to shine light on a rare genetic disorder.

The walk aims to raise awareness of neurofibromatosis (NF). The disease causes tumors to grow on nerves throughout the body. It affects one in 3,000 people, and there's no cure.

The walk's co chair, Shannon McNall, is impacted personally, because her son is dealing with the disease.

“I decided to be the chair for the shine a light walk because I want to find a cure for him. There is no cure. There is no treatment and so that’s something you really want to hear as a parent so we coordinate it, we come out. There’s so many people that came out which is amazing," McNall said.

Money from the event will go toward funding research benefiting the 2.5 million people around the wold impacted by the disease. The Children's Tumor Foundation is the leader in the fight against NF.

Participants of the walk say the sense of community provides comfort.

“It’s just nice to have a community and to feel the love and support that are going through similar things that you are,' said Holly Bartlett, a participant in today's walk.