These times are challenging and especially for families that have children with special healthcare needs. However, with the right preparation, you can keep your child, family and yourself safe.
Experts from the American Academy of Pediatrics suggests that first and foremost, you should prepare your home. Put signs around your home to remind everyone to wash their hands and keep plenty of hand soap, tissues, wipes and hand sanitizer on hand and make kits or hand washing stations if needed.
Talk to your pediatricians or other healthcare providers about upcoming appointments for your child. You can discuss whether or not to delay certain appoints. Ask about changes in how your child will receive lab draw and whether or not some appointments can be done virtually.
You should also talk to your pediatrician about getting extra medicines or supplies that your child needs, including medical technology and nutrition support. During this time, it is also important to stay connected. Social distancing does not mean you are alone and you can always reach out to peer support organizations.
Remember that you are strong and resilient. These times may pose new stressors for you and your children, but continue to try and maintain some routines and stay positive.